Wednesday, 9 February 2011

AUTISM EYE - New UK magazine for parents and carers of children with ASD

A brand new magazine written by and for parents of children who have autism is here!

Autism Eye (http://www.autismeye.com/) is published in the UK and is packed full of information and new research. The publishers have done a fabulous job of bringing valuable local information into one publication. Autism Eye is published quarterly and the very first issue is expected this month.

I like the look of this magazine and it's approach.  It's about time that we had a magazine that was both balanced and informative regarding autism. I wish the publishers the very best of luck and look forward to my first copy.



Have your say on DLA - Last Chance to Respond to Consultation 14 February 2011

It seems Northern Ireland isn't too worried about the potential havoc the new proposed changes to DLA will bring. I have visited various charities including AutismNI/AutismUlster/PAL and there is no mention of these very important changes taking place (AutismNI too busy lobbying for a useless autism bill).

Carer's UK, however,  are urging the public to voice their opinion now before it's too late.


Have your say on DLA! Last chance to respond to consultation
We need your help!

The Government has announced proposals for the biggest changes to disability benefits since the creation of Disability Living Allowance and there are only days left to make sure carers' voices are heard in the consultation.

Can you spare five minutes to respond to the consultation? All you need to do is:
 
Why we need your help:The Government plan to replace Disability Living Allowance with a new Personal Independence Payment, with a new application process including 'independent medical assessment'. In addition, the Government plans to cut £1 billion from the Disability Living Allowance budget, which could lead to hundreds of thousands of disabled people seeing their benefits reduced or removed. Carers UK is deeply concerned that the knock-on impacts on carers have not been considered and we are also worried that the future of Carer's Allowance remains unclear.

The Government's consultation on the DLA proposals closes on Monday 14 February and we need to make sure that carers voices are heard loud and clear. We will submit a full response to the consultation making it very clear to the Government what carers need, but our response will only be counted once and we need lots of carers and carers groups to respond as well.

Best wishes,


Imelda Redmond CBE
Chief Executive, Carers UK
  • Copy our five key points into your email.
  • Write a few sentences about your caring responsibilities or the carers you represent as a group.
  • Send it to the Government and your MP!
Visit our website for these key steps and who to email. more...

Monday, 7 February 2011

Autism Speaks, so Shut Up

Much has been written about the charity 'Autism Speaks'

The youtube video below sums up what many are thinking and the video speaks for itself

http://www.youtube.com/watch?v=xz2X8f15x5k&feature=related

The video could also be describing any number of autism charities, and the big question is, where is all the money going?

Saturday, 22 January 2011

DLA for Northern Ireland is being reformed - make your voice heard now!

Here  ( http://www.dwp.gov.uk/docs/dla-reform-consultation.pdf) is the Department of Work and Pensions Consultation paper on DLA reform.

Bet you didn't even know there were plans to reform it? Alex Atwood brought the consultation to Northern Ireland (London didn't think it was important enough for us to fret our little heads about!!) but it seems no one really knows about it yet, and that probably includes you.

The autism charities certainly didn't tell you,  nor did the other disability charities. So what is all their money being spent on. This is a huge issue and you should have known about it.

Please take the time to read the document and provide your response (before 14 February 2011)

If you don't and the reform is agreed then you may have to say bye bye to your child's DLA. See here for more: http://www.bbc.co.uk/news/uk-northern-ireland-11926796

DO NOT DEPEND ON disability groups to speak for you and your children. Make your own views known.
http://www.dwp.gov.uk/docs/dla-reform-consultation.pdf

After you have read the document you can send your responses in writing to

DLA Reform Team
1st Floor
Caxton House
Tothill Street
London
SW1H 9NA
Fax: 0 2 0 7 4 4 9 5 4 6 7
Email: consultation.dlareform@dwp.gsi.gov.uk
Ensure your response reaches them by
14 February 2011.  Please say whether you are responding as an individual, or on behalf of an organisation. If responding on behalf of an organisation, please make clear who the organisation represents, and how the views of members were obtained.
=======================================================================



Monday 6 December 2010
http://www.northernireland.gov.uk/index/media-centre/news-departments/news-dsd/news-dsd-061210-proposals-to-reform.htm
The Department for Work and Pensions (DWP) today launched proposals for consultation to reform Disability Living Allowance (DLA).

Over 182,000 people are in receipt of DLA in Northern Ireland, 103,500 of who are of working age, and this is the group that will be targeted first.
The proposed changes to DLA include:
  • Renaming the benefit,
  • The introduction of an assessment process,
  • Simplifying the system with a reduced number of rates being made available to claimants,
  • An extension to the qualifying criteria i.e. the new benefit will only be available to those with a long-term health condition, expected to last a minimum of 12 months, as opposed to the current six months,
  • All those who are successful in being awarded the new benefit will be periodically reviewed.
The Coalition government intend to introduce the reforms in 2013/14 and, as part of today’s consultation paper, are asking for the public view on whether or not to roll the proposed reforms out to include children and pensioners in receipt of DLA in the future.
Responding to the proposals Social Development Minister Alex Attwood said: “I am concerned about the scale, pace and intention of these proposed changes, given the high number of people who are in receipt of DLA here. The Coalition Government has to acknowledge the different circumstances in Northern Ireland. I will work to have our conditions fully recognised.
“We have the highest levels of DLA claimants in Britain by far. We don’t have to look too far into Northern Ireland’s past to discover why this is.
“I met with the Westminster Welfare Minister, Lord Freud last week, for the third time. I outlined to him in detail a number of measures in terms of welfare law, benefits practice and hardship needs which I believe will provide a pathway through Northern Ireland’s difficult conditions in a way that would help those in need.”
Minister Attwood added that he will be meeting again with Lord Freud to raise his concerns about the potential fall-out for Northern Ireland if the reform of DLA was to go ahead here.
Minister Attwood continued: “The full impact of many of these cuts and changes is beginning to be felt and understood and this places a higher need and obligation on all of us in London and Belfast to work out how best to do everything to protect those in need.”

Notes to editors:

  1. For further information, please contact DSD Information Office on 028 9082 9497. Out of hours contact the Duty Press Officer via pager number 07699 715440 and your call will be returned.
  2. Questions and answers:

    What is Disability Living Allowance (DLA)?

    DLA is a tax free, non means tested benefit for adults or children with disabilities. It is intended to provide money towards the extra costs associated with disability and can be awarded to those in, or out, of work.
    DLA is divided into two parts, the Care Component – for help with personal care needs, (which is paid at three different levels); and the Mobility Component – for help with walking difficulties, (which is paid at two different levels).
    These factors lead to a possible 11 different payable rates of DLA.
    Where an individual does not agree with the outcome of their claim, they have the statutory right to appeal to an independent tribunal, called The Appeal Tribunal Service.
    To receive DLA a person must meet the eligibility criteria – laid out under legislation - for a period of three months, and be expected to meet the entitlement conditions for at least a further six months.
    The decision to award DLA is based on the customer’s completed application form which details the impact of their disability on their daily lives. This evidence can be supported by relevant medical reports.
    There is currently no process to trigger reviews of awards which have already been made to individuals, to ensure they continue to reflect the appropriate level of support.

    How many people currently receive DLA in Northern Ireland?

    In Northern Ireland, 182,423 people currently receive DLA, ranging in age from children to 80yrs and over - 103,500 of these people are of working age. 48% of all recipients are male and 52% are female.
    Northern Ireland has seen a growth of 2.6% in DLA recipients since 2009 (177,653 recipients); the equivalent rise in Britain has been three per cent since last year.
    Northern Ireland has the highest prevalence of DLA claimants per head of population, in the UK. For example, for every 1000 people in Northern Ireland 102 claim DLA – this is equivalent to 1 in 10 people. In Wales (where prevalence is highest in Great Britain) 80.5 per 1000 people claim DLA, this equates to 1 in 12 people.
    A number of ‘disabling conditions’ are taken into account in the current DLA system, including arthritis, back ailments, blindness, deafness, heart disease, epilepsy, alcohol abuse and learning difficulties, amongst others. ‘Mental health causes’ is listed as the most frequently occurring disabling condition in Northern Ireland, with 41,944 people currently receiving DLA for this reason.

    What are the changes being proposed to DLA on which the Department for Work and Pensions are consulting?

    a.) DLA will be renamed and this new benefit will be introduced in 2013-14. The new benefit will not be means tested. It will not be incorporated into the wider Universal Credit, announced last month. Special rules for people who are terminally ill will remain.
    b.) The consultation paper focuses on working age people in receipt of DLA. The paper also seeks views on whether the proposed changes should apply to children and pensioners.
    c.) An assessment process will be introduced to gauge a person’s entitlement to the new benefit. This will use existing evidence from the claimant, and in many cases include a face-to-face meeting with a healthcare professional to enable an in-depth look at an individual’s circumstances.
    d.) The new benefit will have two components, one focused on a person’s ability to get around, the other on other activities related to participating in society. It is proposed to maintain different rates, but to lower the number of these and simplify the system.
    e.) The new benefit will only be available to those with a long-term health condition, expected to last a minimum of 12 months.
    f.) It is proposed that all those who receive the new benefit will be periodically reviewed.
    g.) Once the new benefit is introduced, DLA will be closed to new claimants. Individuals currently receiving DLA will remain on it until they are reassessed.

    How many people will this effect in Northern Ireland?

    It is estimated that the proposed changes will result in a 20% reduction in working-age claimants once the proposals have been fully rolled-out.
    There are currently almost 103,500 working-age claimants in Northern Ireland.

    Why are the Department for Work and Pensions seeking to reform DLA?

    DWP’s reasoning for DLA reform is to ensure that the benefit is focused on supporting disabled people in greatest need; to help them remain independent and to help them participate fully in society.
    DWP recognise that it will cost money to change the current systems to align with their proposals, but the Coalition aims however, to save money in benefit spend in the long term. The projected savings are estimated to be 20% of the current expenditure on DLA.
    The reforms are a key component of the Coalition Government’s plans to reform the welfare system.
    A group has been set up to develop the new assessment process by DWP and the Social Security Agency in Northern Ireland is represented in this group, to ensure that the specific needs of people, living with disabilities in Northern Ireland, are taken into account.
  3. What will happen to those people who no longer qualify for DLA?(i.e.YOUR SON OR DAUGHTER)Those who no longer qualify for DLA will be offered help and support to ensure that their needs are met and that they receive the level of benefit that they are entitled to, for example, Employment Support Allowance (which has replaced Incapacity Benefit / Income Support) or Jobseekers Allowance.  OH DEAR

Wednesday, 3 March 2010

Glencraig 'Steiner' and Camphill Communities

I find it appalling that the Glencraig 'Curative' School in Holywood, has children who attend there, fully funded by the Education and Library Boards in Northern Ireland yet we do not have an autism specific school for our children.
I would hazard a guess that a placement of a primary aged pupil's attendance there would cost anywhere between £35 and £50,000 per annum depending on services put in place and possibly a lot more. 

 (see: http://www.glencraig.org.uk/)

Link to the Holywood Steiner School: http://www.holywood-steiner.co.uk/


The outcomes for children attending this school are next to impossible to find. Like some of Northern Ireland's "special schools" (aka dumping grounds) it seems Glencraig/Camphill is basically a long term residential care home  for children and adults with intellectual and other disabilities, including some who also have autism, but with a deeply worrying twist, one that is ignored perhaps due to the inability of the inmates to have their voices heard. 

Has anyone in Northern Ireland actually bothered to look into the teachings of Rudolph Steiner or Dr Karl Königlink

Your local ELB will stand back in horror should you ask for funding for an ABA program for your child  but, if they think your child is a  'no-hoper' you might get a paid-for placement at the Steiner School. If ABA has little peer reviewed research backing it up, Steiner has absolutely none -  yet it continues to receive funded places. Maybe the Glencraig school is cheaper than full-time residential care and in the long run saves the Department of Education and the Department of Health money?

Who submits their child to the teachings of these lunatics? How did Steiner's Anthroposophic ideals find their way to Northern Ireland, much find favour with the education/library boards which fund it?

Maybe their endorsement of the Glencraig/Steiner school was based on Steiner's twisted affinity for Ireland.  Perhaps the school took advantage of Northern Ireland's political troubles hoping they would mask the madness of Steiner and Anthroposophy.  In a land where people were murdering each other every day due to hatred and power mongering, perhaps the Steiner School was deemed a welcome haven for the families whose loved ones had no where else to go. 

If you google Rudolph Steiner or Waldorf School together with eco-fascist, screwball and brainwashing/cult, you will be offered links to read, many of which are disturbing and worrying experiences of people who have survived these schools.

Many parents are unable to get an OT to pay for a child's pencil grip yet children are being funded by ELB's, year after year to attend these very expensive facilities.

Here is an account of a Rudolph Steiner School in Wisconson USA. Sounds like a cult to me. As I said, Google throws up countless and similar stories.

http://www.waldorfcritics.org/active/articles/lombard.html

Here is a thread of messages (over 1000) from UK based 'Mumsnet' from parents outraged by what the Steiner Schools have to 'offer' - pay particular attention to what one mother has said regarding Steiner's beliefs about children with development difficulties. http://www.mumsnet.com/Talk?topicid=education&threadid=487528-steiner-waldorf-schools-and-institutions&pg=1&go.x=14&go.y=8

Additionally, here are some Rudolf Steiner quotes:

• “[A]n island like Great Britain swims in the sea and is held fast by the forces of the stars. In actuality, such islands do not sit directly upon a foundation; they swim and are held fast from outside.” [Faculty Meetings with Rudolf Steiner, p. 607.]

• “[I]t is not that the planets move around the Sun, but these three, Mercury, Venus, and the Earth, follow the Sun, and these three, Mars, Jupiter, and Saturn, precede it.” [Faculty Meetings with Rudolf Steiner., pp. 30-31.]

• “If the blonds and blue-eyed people die out, the human race will become increasingly dense.... Blond hair actually bestows intelligence. In the case of fair people, less nourishment is driven into the eyes and hair; it remains instead in the brain and endows it with intelligence. Brown- and dark-haired people drive the substances into their eyes and hair that the fair people retain in their brains.” [Health and Illness, Vol. 1, pp. 85-86.]

• “[Science] sees the heart as a pump that pumps blood through the body. Now there is nothing more absurd than believing this, for the heart has nothing to do with pumping the blood.” Freud, Jung, and Spiritual Psychology, pp. 124-125.]

• “There are beings that can be seen with clairvoyant vision at many spots in the depths of the earth...Many names have been given to them, such as goblins, gnomes and so forth...Their nature prompts them to play all sorts of tricks on man....” [Nature Spirits, pp. 62-3.]

• “[T]he brain and nerve system have nothing at all to do with actual cognition....” [The Foundations of Human Experience, p. 60.]

• “In the course of its development, the good portion of humankind will learn to use the Moon forces to transform the evil part [of mankind] so that it can participate in further evolution as a distinct earthly kingdom.” [An Outline of Esoteric Science, p. 393.]

• “The use of the French language quite certainly corrupts the soul.” [Faculty Meetings with Rudolf Steiner, pp. 558.]
===============================================


 All surreal!

Glencraig School in County Antrim will no doubt be quick to shuffle off any suggestion that their practices or beliefs mirror the worst beliefs of Rudolph Steiner or the murkier practices of the Waldorf School. Yet, a tour of the school and facilities coupled with a few pertinent questions to the staff about their beliefs should raise alarm bells.

The problem is, for most parents considering this school, it's the last choice for their beloved child not their first one. No one walking the grounds of this school would even consider it if their child had other options. In Northern Ireland, educational opportunities  for children, particularly those with intellectual disabilities are few. I am quite sure that for many, Glencraig is the last stop, before even worse involuntary decisions are imposed upon a parent and their child.

In Northern Ireland after your child completes the primary/secondary Steiner School,and enters adulthood after years of being cloistered away from real society and a real life (and is fully brainwashed, probably along with you as well) she or he can then be moved on to the Camphill adult wing and live there forever (if you can pay for it). Your child will be given duties of mucking out barns, growing vegetables or cooking. They will celebrate occultism, harvest moons and will be forced to suffer an unending turnover of staff, many of whom are students from abroad. They won't be using computers and other technology, their access to the outside world will be on the school's terms, not theirs and their psyches will face an unending assault of Steinerism (aka dangerous bunkum).In addition, their health will be treated with anthroposophical "medicine" (look it up, it's not pretty) and eurythmy "therapy" (link) which explains a lot of the dress code favoured by some of the staff.

If your ELB questions your decision to use evidence based teaching models to educate your children, ask them why they continue to fund the evidence free Glencraig School. Ask them why your decision on how to educate your child is ignored while they fund expensive places for children to attend Glencraig where the individual has no choice but to submit to the ideations of Steiner groupies.

Muckamore Hospital is closing so I guess you could call Glencraig/Camphill the new "mental" hospital - with grass.