Hello dear readers. We are at a major crossroads regarding the future of our children and all individuals who have an autistic spectrum condition who live in Northern Ireland.
Yesterday (1 October 2009) in Stormont, a meeting took place of the Health, Social Services & Public Safety Committee. At 2.00pm a Departmental Briefing on Proposals for the Autism Legislation began. If any of you were party to the proceedings you would be reeling with shock. Why? Kieran McShane, parent and ASD Strategy member suffered a verbal outburst from Iris Robinson, MP, DUP in a discussion about the taking forward of the proposed Autism Bill.
Kieran McShane: "I am a parent and carer and a member of the Autism Strategy. Nothing in this bill is for me. "
Iris Robinson: "You may be a parent but I am an elected representative!"
For those of you out of the loop, there is much afoot regarding autism and politics at the moment and if you have not already done so, you will be very interested in seeing this: www.dhsspsni.gov.uk/asd_strategic_action_plan.pdf . Go to page 38 to see a diagram of how parents are going to be key to the future decision making regarding our children.
I personally, am appalled and highly insulted that Iris Robinson DUP appears to hold the view of her friend Ms Arlene Cassidy CEO AutismNI/AutismUlster higher than the views of parents, carers and service users.
I personally cannot equate Ms Robinson's comments yesterday to be based on anything else than what she is being fed by AutismNI/AutismUlster. Who wants this autism bill except AutismNI/Autism Ulster? We have laws here regarding all disabilities and it is my opinion that fear is rising in the hearts of certain organisations both statutory and voluntary that parents are going to be furnished with the power, authority and mandate to shape the future for their own children. Iris Robinson in my view, now has the responsibility to prove to her electorate who she is representing.
If you are a parent, a carer, or an individual with an ASD and you live in Iris' riding,she desperately needs to be re-educated by you.
Does Iris Robinson represent ALL of her constituents who have varying 'disabilities' or does she represent only those with ASD I wonder. Will she fight for legislation for those with cerebral palsy, down syndrome, the blind, and the physically disabled, under section 75? Is she as 'well-acquainted' with the leadership of these groups as she is with Arlene Cassidy? Iris seems to have a lot of time for 'autism' and AutismNI/AutismUlster. I suggest to other 'disability' groups to get cracking and bend her ear equally.
Nothing escapes the attention of parents where politics is concerned. It's not about politics - it's about our children and we are watching, watching very closely.
So many questions. Will the rest of Northern Ireland's carers (185,000) be meted the same treatment as Iris Robinson projected onto Mr McShane yesterday just because she is a political representative? I would not like to think so.
If you would like a dvd copy of the DHSSPS proceedings from yesterday for your own records, you can order your own copy for free by emailing: Sound&Vision@niassembly.gov.uk. In the body of your email advise the proceedings, and the date they occurred. Don't take it from me, watch what is going on for your own eyes.